Family-centered care — that prioritizes families’ needs, expertise, preferences, and values — can result in improved relationships between patients, caregivers, and providers. These practices can also improve experience of care, and ultimately, create a more equitable environment that supports better patient outcomes.
Following are resources to support the co-creation of meaningful partnerships between families and providers.
⭐ KEY RESOURCE
Practical strategies that pediatric practices can use to meaningfully engage patients and families, as well as inform broader care system improvements.
Co-Creating Equitable Partnerships Between Families and Child Health Care Providers
Offers strategies that pediatric practices can use to meaningfully engage patients and families, as well as inform broader care system improvements.
Engaging Community Members: A Guide to Equitable Compensation
Offers guidance to help health care organizations develop appropriate compensation practices for community members — including adults, youth, families, and caregivers.
The Critical Role of Dads: Exploring the Benefits of Father-Friendly Pediatric Care
Explores efforts to incorporate fathers’ experiences and voices in pediatric care and shares presenters’ diverse personal and professional experiences, including a family advocate, a pediatrician, and a longtime father-friendly care advocate.
The Impact of Youth Voices in Transforming Pediatric Care
Spotlights promising strategies for inviting youth perspectives to inform pediatric practice transformation efforts shared by a nationally recognized youth leader, a pediatrician, and youth advisors.
A Patient and Family Advisory Council Workplan: Getting Started
Offers a workplan for pediatric practices implementing a patient and family advisory council.
Tips for Recruiting Patients and Families to Serve in Advisory Roles
Shares strategies that pediatric practices can use for recruiting patients and families to participate in an advisory council.
A Standard of Compensation for Youth and Family Partners
Provides support to families collaborating with researchers on studies and outlines fair compensation for their work.
Patient and Family Advisory Councils Blueprint: A Start-Up Map and Strategy Guide
Provides resources for health care institutions and providers to build and sustain high performing patient and family advisory councils with key lessons from the COVID-19 pandemic.
A National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals
Offers recommendations to strengthen partnerships with patients and families.
Roadmap to Inviting, Engaging, and Including Patient/Family Partners in Quality Improvement and Other Related Initiatives
Offers a framework for effective engagement and inclusion of patient and family voices in work groups, advisory councils, or other clinical or health system initiatives.
Family Engagement: Partnering with Families to Improve Child Welfare Outcomes
Provides implementation strategies for family engagement to improve child welfare outcomes.
Engaging Consumers in Medicaid Program Design: Strategies from the States
Provides early evidence on how state Medicaid agencies are integrating consumers’ experiences and perspectives into their program design and governance.