While complex care is now a widely used approach to support individuals with complex health and social needs, more research is needed to build the evidence base and help the field understand which services work best for which groups of people based on what matters most to patients. To assess complex care’s impact beyond reductions in cost and utilization, a more patient-centered approach to research is needed.
Recognizing this need, the Center for Health Care Strategies (CHCS) developed the Patient-Centered Complex Care Research Agenda with funding from the Patient-Centered Outcomes Research Institute (PCORI). The Research Agenda was co-created by more than 100 partners, including patients with lived expertise of complex care, researchers, providers, and health care system leaders. It outlines three core strategies and corresponding action steps to build a stronger, more coordinated, and patient-centered complex care evidence base. See also a national environmental scan that summarizes information from key stakeholder interviews and a literature review to inform the Research Agenda.